This ToolKit has been prepared to assist all those planning to attend the WPC 2016 in Portland, Oregon; however it is specifically designed for those participants who are living with Parkinson’s disease (PWP). For some of you, this may be the first time that you attend a World Parkinson Congress. It may be the first time you have ever attended a scientific meeting of this size or the first time you have participated alongside researchers, neurologists, scientists and rehabilitation specialists. Whatever your background or experience, our wish is that WPC 2016 will be a positive, empowering and enduring experience for you.
This ToolKit will help you prepare, plan and participate so that your Congress experience will be meaningful and memorable. It will help you understand why you need to be there, how you can effectively prepare yourself to make the most of your days at Congress and how you can participate so that you will feel welcome and connected throughout your time in Portland.
This is a resource for you. As you look through these pages, find those parts that are of value to you and your community and use them in your planning. And please send your comments and suggestions to us so that we can make improvements for future World Parkinson Congresses.
We would like to thank UCB for their support of the WPC 2016 ToolKit.
Why You Should Attend
WPC offers many opportunities for participation and growth. Here is what some past attendees have said about their experiences and why they think you should attend.
Click here to subscribe to the monthly WPC newsletter & read past issues.
The WPC takes place once every three years, but progress in the world of science and Parkinson's is ongoing. Sometimes, exciting news comes out long before the next WPC will take place. The WPC Scientific Update webcast program gives everyone access to the best scientific news as it happens. It is a six-part webcast, which includes twice daily, live, interactive panels delivered by world-renowned experts. It is offered ONLINE only and is FREE. The WPC Scientific Update 2015 was presented on October 6-8, 2015; archived sessions are available online and on DVD for free.
To educate the community and encourage people to attend the 4th World Parkinson Congress in Portland in 2016, Dave Iverson and Jon Palfreman, two highly experienced journalists (who are also living with Parkinson's) survey the landscape of Parkinson's disease research and treatment by interviewing neuroscientists, neurologists, and people with Parkinson's (PwP). These 15 thirty-minute podcasts not only address common questions asked by PwP but also serve as a primer on the biomedical research currently underway. Click here to listen to these FREE educational podcasts.
Would you like to attend Congress with a friend but don’t know of anyone else who is going? Sign up for the WPC 2016 Buddies Program and connect with another registrant from anywhere in the world for dialogue and companionship before Congress even begins. Click here to learn more about the Buddies Program.
The World Parkinson Coalition understands the power of video messages. We launched the first video competition for the WPC 2010 and were surprised by its outstanding success. We once again opened the video competition for the WPC 2013 and received almost double the number of submissions from all over the world.
Send us your photo with a sign telling us you’ll be there. Seeing your photo scroll through on the WPC website home page will surely connect you to WPC. Let the world know you’ll be in Portland in 2016! Submit your photo here.
Sign the Parkinson Pledge, initiated at the WPC 2010. Join the global Parkinson’s movement to make Parkinson’s a priority health, social and economic issue and to advance research to find a cure. The goal is 1,000,000 signatures!!
The WPC Book Nook is NEW to the WPC and will be a space where delegates will be able to thumb through recently published books about Parkinson's. The Book Nook will give delegates a chance to learn about, connect with, and be inspired by authors and publications. This space will be open during exhibit hall hours.
Using the interactive PTP digital web-based platform, participants will sign up for the Project by creating a profile that virtually positions them in Montreal, site of the 3rd World Parkinson Congress. Users will log any form of physical activity that will be converted into miles, and measured in distance. As participants progress along the journey to the West Coast, they will constantly receive new chapters of the PTP exercise and nutrition curriculum, unlock special rewards, achieve milestone badges, and socially connect with a global community that will soon become family. The Parkinson Power Through Project is a new initiative this year. Power your way to Portland -- virtually !! Walk, run, cycle from Montreal to Portland. Register now.
Because care partners need support of their own, we are creating a space dedicated to this group of delegates who give endless time and care to their loved one. The Care Partner Lounge will be a safe place for care partners to meet and greet each other and will be used both as a support group space and for a formal talk each day geared to care partners. View the full schedule here.
The WPC will host a series of art exhibits where artists from around the world will show their work in the WPC Art Walk.
The WPC World Choir is open to ALL WPC delegates: people with Parkinson's, care partners, family, friends, medical professionals, non-profit professionals and students! No singing experience and no cost required. Click here to learn more about the WPC Choir.
It is the responsibility of each delegate to do everything possible to ensure his/her own safety and well-being for the duration of Congress. Thorough planning is mandatory.
Please refer to the Medical Responsibility handout for more details on your health care responsibilities.
Just as Parkinson’s disease affects each person differently, the comfort level you feel for traveling will vary depending on your symptoms and your previous travel experiences. You may feel intimidated by the thought of traveling because of the challenges you face with movement, speech or mental acuity. Yet the journey to a place and the return trip home are integral to the overall experience. Even the simplest or shortest journey needs careful planning. By following some basic steps and being well-prepared and well-informed, traveling can be enjoyable and rewarding. If at all possible, allow for a rest day after you arrive at your destination so you can recover from the journey and be ready to participate when Congress opens. For a great traveling experience to Portland, check out the suggestions and tips we have put together in the following handouts:
If you use Duopa/Duodopa, there may be some extra details to attend to, but you will still be able to travel. Your pharmaceutical rep can provide you with a Travel Checklist for Duodopa to ensure you have thought of all travel concerns and are well-prepared. Any questions you have could be discussed with the drug provider or representative.
For specific information about traveling to Portland, visit Getting to Portland.
Planning Your Day
There are three classifications for the sessions (basic science, clinical science & comprehensive care) and three presentation levels (highly, moderately or minimally scientific) to help you identify the intended audiences. Each presentation will be identified with 2 symbols or icons to indicate session type and level.
There is a lot happening each day at Congress. Besides the presentations, there are many other activities, displays, events and opportunities that you may be interested in and that are also an important part of your Congress experience. There are several new initiatives this year. All have been planned with you in mind. To help you select the activities you would enjoy participating in, we have created a checklist for you to use as you contemplate your daily schedule. You can download the Checklist of Events to assist you.
There are several things to consider when you map out your schedule for each day - not only your own interests but also your energy and abilities. Tips to Help You Plan Your Day has been developed to guide you in determining what you will choose to do each day. Remember to remain flexible and to pace yourself.
When you have decided which sessions and activities you will attend, you may want to use a Personal Daily Schedule. At a glance, you will be able to see what your day looks like. We are providing two options. If you like, download one of these daily schedule templates for your use.
Click on either image below to open a printable document for your use.
It is often useful to familiarize yourself on where to find locations of interest. This floorplan should help!
Portland is a beautiful city with many attractions and activities to enjoy during your visit. The following links provide information that will help you plan your trip. Discover what makes Portland so special.
NOTE: At registration every WPC delegate will receive a complimentary 7-day TriMet pass to be used during the week of the Congress. This pass can be used on the all Portland public transportation (buses, Max Light Rail, WES commuter rail and Portland Streetcar).
There are many things you can do to promote the WPC in your community. Read our Promote the WPC for ideas. Brochures, postcards, posters, and other materials are available either online or from the WPC office. They are available in print or electronic form on the WPC website.
Revisit the WPC's comprehensive glossary to understand new terms. Click here to view the glossary.
We would like to thank UCB for their support of the WPC 2016 ToolKit.