|Leadership Forum Agenda|
WPC Leadership Forum 2016: Building a global Parkinson’s community
Monday, September 19, 2016 in Portland, Oregon
Target audience: Leaders from Parkinson’s organizations globally alongside secondary associations that serve the Parkinson’s community (rehabilitations specialists, movement disorder society, movement disorder clinics, etc.)
Goal: Designed to start a conversation around how we can more effectively collaborate while setting the stage for a global effort to raise awareness around PD and improve care for people living with PD.
EMCEES: Steve Ford (UK) and Maria Barretto, PhD (India), WPC 2016 Organizations Committee Co-Chairs
7:30AM - 8AM – Check In
8AM – 8:30AM Coffee, light breakfast, hang & view posters, meet & greet, networking,
8:30AM –Welcome comments from Eli Pollard, WPC Executive Director (USA)
8:35AM – Emcees - Why collaboration and networking is so crucial to good care and how we can learn from each other to improve the Parkinson’s situation for people globally. Taking a closer look at the importance of outreach in emerging and developed countries, to niche communities dealing with language, economic and geographic barriers.
8:55AM – 10:30AM – Session I – OUTREACH
10:45AM – 11:30AM (45 minute round table talks)
Hosts are asked to prepare simple write up beforehand, which will be shared with all participants. Participants will, based on their interest, choose their three or four preferred topics. We will assign them tables. Hosts are to prepare posters ahead of time, that are more detailed than the short summaries, to be displayed in room. People can review posters in the morning, before we get started or during breaks over the course of the day. Based on these posters, people will be asked to choose their preferred roundtable topic.
#1: Creating a communication tool for clinical researchers and participants in clinical trials: The Clinical Trials Charter. What it means and how you can implement it or use it within your own organization.
#3: Patients as dancers: fostering collaborations between the Parkinson’s community and professional dance organizations around the globe. What is means and how you can implement it or use this information to get a program like this off the ground for your own organization.
#5A: Spanish outreach efforts and successes in the USA
#5B: Spanish outreach efforts and successes in the USA
#6: Training the trainers: How to develop community resources through training and engagement in populations with minimal or no access to medical care and treatment.
#7: Could every doctor be a Parkinson’s expert?
#8: EPDA Parkinson’s Life online magazine: building communities online and Lessons learned
#9: Pay It Forward: Creating a donation-based funding model where no patient is denied therapy services based on insurance or financial limitations.
#10: Fundraising in the nonprofit world of Parkinson’s: Tips on how to step up your game
#11: Access and Awareness in Emerging Countries
(11:30 – 12:15PM – REPEAT of ROUNDTABLES)
12:15PM – 1:15PM LUNCH
Over lunch, participants eat, network, and view the posters before starting back at 1:30PM.
Oscar Gershanik, International Parkinson & Movement Disorder Society President (Argentina)
How IPMDS aims to serve the world and envisions collaboration with the advocacy community.
1:50PM to 2:15 PM – Bringing forward the day when no one fears Parkinson’s
2:15PM to 3:50PM – TRAINING OF TRAINERS 2.0
4:15PM – 5PM Creating an international community: Learning from each other