Meet the WPC 2016 Buddies Coordinators
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Deanna Krywy (Canada): Deanna’s goal in life is to enjoy every day no matter what it may bring while never having boring hair! Deanna was diagnosed with Parkinson’s disease at 50 years of age, just a short 6 years ago. It turned life upside down for this mom and fitness nut but in doing so also created great unexpected opportunities. Ice hockey, field lacrosse and rowing were her passions and were hard to give up, but Deanna now spends her time gardening, snorkeling, stand-up paddle boarding and learning how to salsa. Since being diagnosed, Deanna has zip lined in Costa Rica, bungy jumped on Vancouver Island, tried scuba diving in Curacao and taken surfing lessons in Barbados.

Deanna has two adult sons and a core group of special friends that keep her busy enjoying life.  She spends summers in Victoria, British Columbia, Canada and winters on the island of Barbados.

Her past professional life includes a variety of interesting positions including stints as a dog catcher, private investigator, travel agent and mystery shopper, ending with 20 years in various administrative roles within the Provincial Government of British Columbia in Canada.

Deanna was a buddy participant for the WPC 2013 and describes her buddy as “a sister from another mother”!  Deanna is excited to bring her “joie de vivre” to the Buddy Program and looks forward to meeting all the buddies at the WPC 2016 in Portland Oregon.

Kip Smith (USA): Kip first showed motor symptoms of Parkinson's disease in late 2005-early 2006 when his right shoulder and arm started to become rigid. Other symptoms followed so that by 2009 he knew something was wrong. It was 2010 before he went to a neurologist for an unrelated condition and was officially diagnosed with PD. Since May 2012 he has had DBS which has eliminated his tremors and about 95% of the slowness and rigidity he once had and has allowed him to continue working full-time as a Meteorologist.

After work Kip exercises on his elliptical and oversees the operation of two local support groups he helped organize. He had such a good experience with the Buddies program of the WPC 2013 that he volunteered to be one of the Coordinators for the WPC 2016.

Sue Whipps (UK): Before her husband’s diagnosis of Parkinson’s in late 2007, Sue Whipps had a career in primary school education. Both she and her husband, John, worked all the hours God sent and had very little time for anything else. However, with diagnosis came a serious rethink. They both took early retirement to live with a sea view in Cornwall, UK and to take things easy.

Well, that lasted all of three months. They received so much help and support from other people with Parkinson’s John and Sue soon realised that while they could, they wanted to become involved in developing support networks. They became involved with Parkinson’s UK in Cornwall, and set up a successful Young Onset Parkinson’s group.

The WPC Buddies Program in 2013 brought together people from all over the world, to exchange experiences, support each other during the congress and many to make lasting online friendships. Sue would like to help develop this idea for the coming Congress in 2016.



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